In a series of 34 children with a mean age of onset of 11.7 years treated at Great Ormond Street Hospital, London, a good outcome was obtained in 60 per cent, but there was a mortality rate of 7 per cent over a mean follow-up of 7.2 years. (!15) In a series of 60 patients in Berlin with a mean age of onset of 14.7, followed up for at least 4 years, recovery occurred in 68 per cent of patients but there was a 6.6 per cent mortality over a mean of 4.8 years. (U6) In both studies a somewhat higher mortality rate was found than in the Danish study already mentioned.
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